Lupus hair loss: managing the fallout

Remember that hair loss I mentioned a few months ago, the fallout that I thought was subsiding? Well...I was being optimistic. I thought it was on its way out (the episode, not the hair), but I'm still losing strands by the dozen. It's okay, though. This, too, shall pass. But man, can it be unsettling.

Speaking as someone who's lost a good portion of her hair multiple times (I've lost at least 40% of the volume four times, and at least 70% of the volume one additional time), I've assessed that there are several stages involved in hair loss. Here's how I would describe them:

Stage 1: "Wow. I think I'm losing my hair. That's kinda crazy." In this beginning stage, you're almost in awe of the loss. It's never good to lose your hair, of course, but the loss is so minimal, you're just kind of surprised that this lupus symptom is actually happening to you, just like it says it will in all of the lupus books. Still, you openly talk about the loss...kind of like it's good party conversation. It's not noticeable to anyone but you, so you don't give it a second thought, or at least not much of one. You think you might even just be blowing the whole thing out of proportion - optimistically thinking that the strands will cease to fall after a week or two.

Stage 2: "Hmmm. I'm really losing a lot of hair. Like, a lot." This is the stage where you can confirm, without a doubt, that hair loss is taking place. You don't know what's causing it, but you would like it to stop. Now. It's still not noticeable to anyone - maybe your spouse or close friends - but you know the volume is rapidly decreasing. It's no longer a topic of conversation - although you may consult a few close friends to see if they've ever experienced anything like this.

Stage 3: "Okay. This hair loss is not cool." I don't like this stage. It's the stage right before the stage where you decide to proactively deal with the loss. Until then, you're just kind of holding on for dear life. Literally. It's as if you can feel each and every strand falling from your head, and you do whatever you can to keep each one in its place. You no longer mindlessly fidget with your hair, and you don't tousle mid-day to make it look fuller or bouncier. You just try to keep your hair as still as possible in order to minimize the loss. At this point, you don't talk about your hair, and you don't want anyone else to mention your lovely locks (or lack thereof) either.

Stage 4: "Yes, those are bald spots. And yes, I'm losing my hair. ..but it's okay. I'm dealing with it." This is the stage where you find out what you're really made of. Although you may think this is the worst stage of all, it's not. As far as the bare spots on your head - sure, it's not going to get much worse than this. But as far as your mindset, and your ability to cope with and manage the fallout - things are looking up.

So you're losing your hair? Yes, it's upsetting and frustrating, and you wish it weren't happening to you. But you realize that you're more than just a few strands of hair on your head. Your identity isn't wrapped up in your appearance, and your long wavy hair (or short curly 'do) doesn't define you. It can't; currently, you don't have much hair to speak of, and yet you're still here, present and accounted for. You're still mustering up the strength and courage to deal with your hair loss, and with lupus, for that matter, one strand at a time.

This is about the time you look yourself in the mirror, admit that your hair situation is pretty grim, but decide that you're a big enough girl to deal with it. You've accepted this as a manifestation of your illness, one that you can't control, but one that isn't going to get the best of you. Even though you don't know how or when it will get better, you're going to hold your head up high, and believe that one day, that head will once again be full of hair.

Maybe there's even a little new hair growth on which you can and should pin your hopes. Hair does grow. It just takes time. So in that meantime, it's time to pull out all the stops. You cut way back on your shampoo days, you forgo the hair dryer and the straightening brush (because that's, like, the ultimate hair loss no-no), and you resort to barrettes, hair bands and anything else that keeps those remaining wisps under control. Just by waking up every morning and facing those bald spots, you're reminding yourself that lupus isn't going to win. Not now, now ever. You're stronger and more resilient...even in spite of your hair loss.

A friend and I were recently discussing the ol' hair loss issue, and I was reminded of all of the things that I've done in the past to manage the fallout, this most recent episode as well as in hair losses past. Good news is that I currently have spiky new growth at least an inch long over most of my head, so I know new hair is on its way. It's a real pain to contend with that short, stubby stuff as it's growing in...but I'm not complaining. New hair is new hair, plain and simple!

On Wednesday, I'll give you my short list of to-do's when I'm faced with the fallout, most of which I've employed myself over the past few weeks. If you have any additional tricks or tips - let me know. I'll be sure to add them!

Comments

Anonymous said…
Hair extensions can help ( the newest kind that uses beads not glue), a keratin treatment helps with the ugly texture that my hair has taken on...I hope and pray I have a full head of hair again one day...in the meantime, I am taking biotin and being gentle with what I have. I would love to hear of anything that works!
Sara Gorman said…
Oh, tell me about the texture! That's probably why my short, stubby growth is so difficult to tame. I was just lamenting my hair styling challenges to my au pair (the benefits of having another grown up girl in the house...), and she was suggesting I use a little product (gel, mousse, and the like) to tame my cowlicks. Perhaps I'll add a little keratin treatment to my shopping list, too!

Thanks for sharing!
Anonymous said…
I have tried every product that promises any type of result. Keratin has been the only thing that has made my hair look like hair again. I wish I had more hair, but what I have is finally in good condition. Make sure you get the treatment done at a reputable salon, or you can cause more damage ( if done poorly). Also, the WEN line of hair products seems to be gentler and easier on the hair than anything else I have tried.
Anonymous said…
I have been through all of those stages this past year. Losing my hair has been the most emotionally painful part of my lupus/UCTD diagnosis. I have lost all of my hair on my head, most of the hair on my body and now my eyebrows! Treatments did not work for me and despite my current medication regime my hair is not growing. The good side of this is that it is not painful and does effect my ability to live life. I have my moments, but as you have so eloquently stated hair does not define who we are and I would rather be judged on my contributions to society than what I look like.
Anonymous said…
For those women who suffer hair loss due to underactive thyroids, there are natural thyroid supplements that could help.
Sara Gorman said…
Thanks, everyone, for sharing your thoughts.

theinvisibleside- hang in there...sounds like you're fighting the battles you can, and letting the other ones (like your hairloss) fall by the wayside. Thanks for finding the positive side of things, and for reminding us that our contributions are what really matter. Hopefully, it diminishes the importance of that hairloss...reading your thoughts certainly helps me!
Inekka LYTL said…
I wish i wasn't losing my losing my hair... I know things could be worse, but I still wish I wasn't losing my hair. I don't feel good about it. No one really knows what it feels like to have your "crown" taken from you. I have atleast 50% loss right now... I miss my hair... I miss being able to style it like i want to. I miss the confidence or assurance I had, that you dont realize you had until you dont have it. Sometimes I feel embarrassed. Ppl say im beautiful all the time,(they see me with "my hair done") but what about without hair? Would you think i was beautiful then? I love myself but sometimes i dont feel pretty... I feel im living a double life... I try to wallow in it... Im just praying that things get better. I want my hair to grow back. But if this is the worse thing that would happen, i should be indeed grateful.
tiki said…
try honey treatment to prevent hair loss, it is work great for me


Hair Loss Treatments
Gina said…
You guys have some really good info here, both blog and comments. Appreciate all the help and thanks for sharing your expertise.
Anonymous said…
Sara, When you were in Stage 3 of hair loss, how long did it take for you to see about an inch of new hair growth? I'm desperately looking for the light at the end of the tunnel. I think I can cope with the hair loss as long as I know there is hope around the corner.
Anonymous said…
I mean my hair used to be super long but now I have really short haie. I really want long hair, cause I have to wear my hair in puff balls (childish) or an afro (or if im super drastic braids.) So now im thinking of washing my hair every day. Is that a good idea?
Anonymous said…
I know how it could be frustrating to see changes with our physical appearance. Hair loss, for me, is only natural. I mean, as we age, we start losing hair as well. But there are several solutions out there. One is hair transplant. Anyway, I think you are a great person, Sara, and nothing beats facing life’s challenges with a smile on your face. =D

Paola Basilio
Sara Gorman said…
When you get the chance, let me know how you're doing. i'm just seeing this comment for the first time today--and i image you're at a different stage altogether. thanks for sharing. no doubt your honesty helped someone else learn to cope!!
Sara Gorman said…
Just seeing this comment now, and hoping that you're at a different stage than the last time you wrote!

to answer your question--i can't say how long it took for me to see growth, simply because i can't pinpoint when i started losing it. But hair DOES typically grow back...it's the waiting that's so hard!! Thanks so much for sharing
Sara Gorman said…
Again, just seeing this now...but in my experience, washing less frequently definitely helped keep the hair on my head. When i washed it, i lost clumps, when i didn't wash it, i only lost strands. just a product of moving around the hair, i guess. But, you have to go with what works for you!
Sara Gorman said…
Thanks for your kind words! And thanks for sharing--it's a good reminder as to what's to come, and how to deal with it gracefully. :)
Anonymous said…
I am going thru my 2nd bout of hair loss. The first bout was a real eye opener. Funny how stress makes it worse yet who cant stress about it. Reading this blog brought back memmories exactly as you said. I am again desparately looking for any ways to slow the loss until new growth comes in again. I remember being so happy before to see the new growth and knowing it was not gone forever. Last time new growth was already coming even while I was still losing the long. But it did mean losing length from mid back to neck length and not a good look for me. My hair was always too thick but watching it leave my head by the 100's I cannot even explain the dread of wondering how far it would go.
I had been very ill in July thru Aug 2010 hair loss started approx end of Sept and new growth was noticed by Oct but the remaining hair was so bad off and thinned out I just had to have it cuttoff and evened out. Now here I am again June 2013 was very ill in middle of Feb 2013 and hair loss became really noticeable middle of May and still going strong middle of June. I have cut back on washing every 3rd day. I keep it braided as much as possible especially over night. I am taking biotin 5000 Mg per day.
I am going to get it trimmed up and get some layers going now to help reduce the noticability of the loss some. Hopefully it will help when the new growth comes in.
Keratin hair treatment are too expensive when done by trustworthy sources and really are not good for you or your hair even tho the immediate results look good so please do research or ask your doc if it is ok for you first.
Good luck to everyone.
Sara Gorman said…
Thanks so much for sharing your story, and for the advice on keratin. Here's hoping the layers do wonders. New growth is around the corner! Take care and thanks - SG
Anonymous said…
I've experienced hair loss for the first time. Its growing back. Slowly. But still shedding when i wash it. I wish that would stop. I'm taking 400mg of Plaquinel
Hair transplant cost, cheap hair transplant clinics and surgeons without compromising quality is still major concern for many hair loss patients. Hair transplantation prices varies in different parts of world and one can find cheap hair transplants in U.K , USA..
Hanan koubaissi said…
reading your posts was very touchy yet so depressing.. i am a lupus patient too this started around 2 years ago when why hair started waving goodbye !! it was a shock at first then i got used to the idea actually its hard too see these changes.. my hair was long and very thick i lost around 50% of my hair and i have a short hair now.. my doctor said that if i take my medicines correctly eventually i will experience growing hair but this is not true because im always taking my pills and i feel better now but still losing y hair !! i can see small tufts but the hair im losing is much greater than these tuft im afraid of being bald someday dunno what to do i was strong but now im not actually im writing in a hand and wiping my tears in the other
Sara Gorman said…
Losing your hair IS cause for tears, I agree. It was one of the hardest thing for me - but if you're seeing tufts, that's the best sign indicating that it really is growing back.

That said, I still wouldn't hesitate to mention it now and again to your doctor. You want to make sure that he/she continues to see new growth, and you don't want to miss the opportunity to consult a dermatologist for other options, if it becomes necessary. But know that waiting for those tufts to fill in took more patience than I even knew I had!
David talpur said…
This comment has been removed by a blog administrator.
Best hair oil said…
Great post! The fact that you means someone is reading and liking it! Congrats!That's great advice.


Ayurvedic Oils Onlinepp
Jennifer said…
I was wondering if anyone has just shaved their head when it gets to the point I am at now, patches gone, remaining hair brittle and totally lifeless. I have had lupus over 20 years and I have experienced hair loss before but not like this. I am fortunate that I had very thick hair to begin with but this is the worst it has ever been. Thanks for suggesting keratin. I am currently on biotin. No changes yet though.
Sara Gorman said…
jennifer--sorry your hair loss has hit a new level. i think it's so frustrating to have had lupus for a decade or more, and to have new (or new versions of) issues to deal with! i've experienced hair loss about four times, one time far worse than any others. that time, i decided tocut everything off. i didn't have the stylist shave it, but rather, it was more like a buzz. i recommend taking a friend if u decide to do it. it's a monumental step--and while scary, it left me feeling the most inspired and energized! i was finally doing somethig proactive, rather than just continuing to nurse my poor strands of hair i had left in defense. that said, i only did that once. the other three tines i was right in just waiting it out. go with what feels right, and good luck!
Unknown said…
I’m sorry you had to go through that. Have you considered going for procedures that will reverse your hair loss? Of course, you have to ask your doctor first before undergoing any treatment. It doesn’t have be a surgical procedure though. There are solutions such as Minoxidil, which stimulates hair follicles when applied to the scalp. Dr. Sara @ BajaHairCenter.com
I'm sorry that someone is taking Paquinel. I held out for a long time because I don't like taking drugs but finally got desperate. If I hadn't noticed after one month I would have completely bald so I stopped. I checked the Iternet for Paquinel and it causes hair loss - how can doctors prescribe that to help? That was a couple of years ago and now I am almost bald. Tired of wearing wigs and trying to find something somewhere to help.
Allan said…
hair transplant costs in gurgaon for Men and Women is FDA Approved and has been consistently rated
Sara Gorman said…
social action - some of these drugs we take have crummy side effects, huh? I personally haven't had too much hair loss due to plaquenil...it's seems to always come from other sources. :( That said, I wish you the best and hope you're able to find a better solution soon - Wigs can be so tricky. my neighbor is currently undergoing cancer treatment, and is trying to build up her hat collection. it's not a perfect alternative, but she's making it work!
Helen Evans said…
This comment has been removed by a blog administrator.
Allan said…
This comment has been removed by a blog administrator.
Anonymous said…
I am going through the same thing :( I've started taking pictures weekly but to be honest, if I never stop coming my hair, it never stops falling out. There was a time my hair was gorgeous and people would aww at how beautiful it was, now I just try not to touch it at all. Someday's I wear a scarf to give it a rest. As you said this to shall pass, so I guess we gotta get with the program.....
Sara Gorman said…
I think wearing scarves (or a hats) now and again provides a much needed rest to our mental stamina! I found that my "I'm okay with this" attitude went in waves. I'd be fine for a week straight, and then I would see an old picture, or be primping for a night out, and get frustrated all over again. But getting through those isolated moments gave me the boost I needed to make it through! Thx for sharing!
Unknown said…
This comment has been removed by a blog administrator.
Miss Muse said…
I am so happy that I found this site as I can relate to so many of these comments! I was just recently diagnosed with Lupus. It was scary, but also such a relief to finally know what was wrong with me.

I've had 4 major sheds in the past 4 years, and yes, they are heartbreaking and scary at the same time. But I'm not my hair. Although I've thinned out a lot and I miss my old thick beautiful curls, I realize that the people who matter in my life could care less about my thinning and would still love me if I lost it all. And as for strangers, I don't really care what they think. I just remind myself of what really matters: family, friends, giving back, and beating lupus ;)

Hang in there everybody and know that you are not alone!
Sara Gorman said…
Thx for your great comments. I've always thought that once u lose your hair, u realize very quickly how little people really care about it. You build it up in your mind, but once it's gone, everybody just finds a way to deal with it. Including you!! :) thx for the encouraging words!
rosalyn said…
Ros mortis uk. I have been sitting here getting upset at the loss of my once enviable locks that are now like my granddaughters hair. In fact she now has thicker hair than I do. It is horrible and I feel myself going through grieving for it. However life does go on and like many bloggers here if you can live with all the other challengers lupus brings then although this is most womens worst ni ghtmare.i think it also creates the most character and teaches you what is important. Does anyone have advice about if or when to wear wigs and at what stage of hair loss to start so that not everyone knows it is a wig! Or even if a weave is a better way to go. It's real hair or acrylic wig better and does anyone else also feel embarrassed at going to the hairdresser who used to tend to your thick locks?
Unknown said…
Very interesting and useful post indeed. i was looking for some help. my sister is in problem as she is facing severe hair loss problem. she is around 48 years old and needs hair restoration services. your post seems helpful.
Unknown said…
This comment has been removed by a blog administrator.
Anonymous said…
I actually found this blog and that is amazing thing I enjoy reading this easy to understand stuff. Keep it up. hair loss
Unknown said…
Hair transplant Pune has latest technique to transplant the hair. Follicular unit extraction is one of the safest techniques to implement.
Allan said…
This comment has been removed by a blog administrator.
Unknown said…
Great posting and it is correct that vitamin d3 helps to protect hair loss but you have to also focus on some natural tips such as wake up early in the morning, exercise, eat balanced food, don't more eat fast and spicy food, don't use different types of shampoo and soap. if you are looking for how to hair regrowth then you can also do it.
Unknown said…
Nice article,always loved to read your posts and I would like to add some more tips related to hair transplant cost in India and its procedure .
pavan said…
HI,Nice Information and it is useful for me and who wants Hairtransplant in Hyderabad
Unknown said…
There are mostly people who are worried about their hair fall but in this blog you told about the solution that manage the fallout keep sharing post like this.

Herbal Beauty Salon in NY | Herbal Beauty Salon Valley Stream
Nice Article on hair falling! I liked reading your blog post, really helpful. Hair And Makeup Melbourne
Propecia Now said…
This is very nice blog in which you discuss about the problem of hair loss and give solution of them. You can also use propecia. I am using propecia for Hair loss & its really effective.
sunita said…
For hair loss problem DualGen-15 is very effective as it has the maximum strength of FDA approved hair growth stimulator (15% minoxidil), DHT blocker (5% azelaic acid), minoxidil enhancer (0.025% retinol) and hair follicle stimulator (0.001% caffeine). No one else is offering a product that has these four clinically and scientifically proven ingredients in one formula.

Propylene glycol (PG or PPG), a major component used in any other minoxidil hair growth product (such Kirkland minoxidil, DS laboratory) as a delivery vehicle, is not used in this product to avoid any scalp irritation such as scalp itchiness and/or inflammation. Glycerin is used as the delivery vehicle. This product is called Dualgen-15 NO PG to be differentiated from the other product called DualGen-15 With PG that has same effective ingredients but compounded using propylene glycol as the delivery vehicle.
www.dualgen15express.com
Anonymous said…
Thanks for sharing..!! I love your post.I am looking more post like this one on this blog .. this post proves really helpful for me.Cost of Hair Transplant in Bangalore | Best Hair Transplant in Bangalore|FUE hair Transplant in bangalore
Hair Regrowth said…
Remember that hair loss I mentioned a few months ago, the fallout ... ahairregrowth.blogspot.com
Unknown said…
This comment has been removed by a blog administrator.
Mylka Sebastian said…
It was really hard to prevent hair loss, especially when you have autoimmune disease like lupus. Your antibodies kills even the normal cells of the body that includes the hair follicles thereby causing alopecia. And t give solution that many of them especially men who experience it, resort to undergo scalp micropigmentation to at least gain more confidence and have a youthful look
priyakiran said…
informative conversation....
lack of vitamins,water and sudden change in climate are common problems for the hair loss.....
those who facing the problem use Alpecin Hair Growth Liquid Energizer available online at https://www.clickoncare.com/alpecin-liquid-hair-energizer-200-ml and follow the tips provided above....
Unknown said…
Poor nutrition and limited food intake may cause nutrition deficiency and this leads to hair loss problem. I am using Plantur 39 for my hair loss problem bought it from clickoncare.com
superate said…
This comment has been removed by a blog administrator.
Hrithik said…
Guys Have look at this online shopping site....
clickoncare.com.
You get here many health care products.....!!
Marmm Klinik said…
Nice post. Thanks for sharing this useful information about hair transplantation & treatment for hair fall. We provide services of hair transplant in jabalpur.

Regards,
hair transplant in Indore
Anonymous said…
Very nice blog and Thanks for describing useful information about effective solution for hair loss.FUE hair Transplantation in India| Cost of Hair Transplant in Bangalore|FUE hair Transplant in bangalore
Radhika Sharma said…
This comment has been removed by a blog administrator.
Brijitha said…
Plantur 39 is a good hair loss solution for ladies who worrying about hair loss after menopause.
Unknown said…
Herbal Care 99 provides the best medicines for all deceases and problems.

Buy Pain Relief Medicine Online
Anonymous said…
stress and unbalanced diet is the main cause of hair loss.
Hair Transplant in Islamabad
Unknown said…
Thanks for share nice article i like after read keep it up..and i like share one more nice article.

http://trendsfuel.blogspot.com/2015/02/how-to-stop-hair-loss-and-regrow-hair.html

Unknown said…
Thanks for sharing such important information with us.
Buy Pain Relief Medicine Online
Anonymous said…
it feels awesome to read such informative and unique articles on your blog

hair loss solution | womens hair problems
Anonymous said…
it feels awesome to read such informative and unique articles on your blog

hair loss solution | womens hair problems
Anonymous said…
Your expieriencing hair loss is great...
that is so cute, I would of never thought of that. I am definitely making me one or maybe a few!

healthier nails | Iain Sallis
Unknown said…
This comment has been removed by the author.
Unknown said…
Thanks for this information. Hair transplant is the best way to get hair back. Dr. Parvesh jain is one of the best Hair Surgeon in India with latest FUE techniques. he has served thousands of hair transplant surgery with the latest FUE and FUT techniques.

Hair Transplant in Delhi | Punjab | Ludhiana || FUE Hair Transplant
Unknown said…
really nice information thank you for sharing this importaint blog with us hair transplant in indore
Anonymous said…
can you explain that how to save the hair loss by your blog and by hair transplant how many days take to get their hair back

hairjelly | solution for hair loss in women
Anonymous said…
This kind of blogs is too attractive that catch the attention of anyone through their great features. Everlong True Beard
Nagender said…
Good review ,sara. Great informative article.
Hair loss Treatment Clinics in Hyderabad


Unknown said…
Thanks so much for sharing your Blog post and for the advice on keratin. I have been also facing the hair loss problems from the so long time and I get much knowledge from it.

Hair Transplant in Jalandhar || Hair Transplantt in Ambala

Anonymous said…
I honestly appreciate your post,shared Good information on Hair fall.
Hair loss Treatment Clinics in Hyderabad
Carol Anderson said…
This comment has been removed by a blog administrator.
Carol Anderson said…
This comment has been removed by a blog administrator.
Unknown said…
Nice very use full information i think you guy's should have a look on Hair Transplant in india its really effective and usefull hair transplant. Please Visit:

Multi Ethnic Hair
Hair Products For Women
Unknown said…
I am happy to find this content very helpful and informative for me.

Thinning Hair Shampoo
Unknown said…
Different types of hair styles are in reality a best option for those men who use to possess limited hair on their scalp. Then in such situation by adopting right kind of hair cut or adopting right type of hair style person may enjoy his desired look.

Hair Transplant in Jalandhar || Hair Transplantt in Ambala
Radhika Sharma said…
Hair loss problem is very common in woman.My mother also facing same problem and we have tried many products. But result was zero. Then I search on google and get information about Hair Transplant in Indore.And I am glad that they give us proper and very good treatment.
Unknown said…
This comment has been removed by a blog administrator.
sandra said…
This comment has been removed by a blog administrator.
Richee said…
This comment has been removed by a blog administrator.
Unknown said…
Hair Transplant in Surat treatment will be able to give you new life & confidence which you lost because of your hair loss & baldness problem.After treatment you will find that you are a completely different , Beautiful and young.
Unknown said…
This comment has been removed by a blog administrator.
Unknown said…
This comment has been removed by a blog administrator.
Unknown said…
This comment has been removed by a blog administrator.
Unknown said…
This comment has been removed by a blog administrator.
Unknown said…
This comment has been removed by a blog administrator.
Anonymous said…
This comment has been removed by a blog administrator.
Deniel nash said…
Our London Beauty Salon is your ultimate retreat which is Located in the city Harley St, London. Beauty Express is an extremely personalized and professional beauty and blow dry salon. It offers a truly unique experience for every client.
Anonymous said…
This comment has been removed by a blog administrator.
Barbara Macelli said…
This comment has been removed by a blog administrator.
Anonymous said…
This comment has been removed by a blog administrator.
Anonymous said…
Hi,

I am suffering from hair loss due to discoid lupus on the scalp. I have pretty much lost 80% of my hair on the right side; there is a very think line of hair at the front, which I use to cover up my big bald spot. All the doctors I have met have ruled out the possibility of hair regrowth, because the scalp is badly scarred. They are just trying to confine the spreading of the lesion right now. I hope it will not spread anymore, especially towards the side that has the thin line left; and if it does, I will not be able to cover up my spot anymore.

I have started looking for wigs/hair extensions and in fact anything that I can try to cover that spot.

It's quite frustrating for me, since I was the girl with the most beautiful hair growing up; and that was kind of my identity. No matter how much I try to pacify myself saying that "its ok, its just hair, I am still alive" - it is still very difficult.

Any ideas or inputs on what to try for wigs and hair extensions would be great.

Thanks.
Sara Gorman said…
Know that you are very brave!! My hope is that you're able to find a few wigs that suit you well. I've met so many people with discoid lupus over the years who wear wigs - but I never knew they did until they told me! The right wig or a cute scarf/hair piece can work wonders. I know looking cute and feeling cute can be two separate things, and can take time - so I wish you well on both fronts!!
Sara Gorman said…
Know that you are very brave!! My hope is that you're able to find a few wigs that suit you well. I've met so many people with discoid lupus over the years who wear wigs - but I never knew they did until they told me! The right wig or a cute scarf/hair piece can work wonders. I know looking cute and feeling cute can be two separate things, and can take time - so I wish you well on both fronts!!
Sara Gorman said…
Know that you are very brave!! My hope is that you're able to find a few wigs that suit you well. I've met so many people with discoid lupus over the years who wear wigs - but I never knew they did until they told me! The right wig or a cute scarf/hair piece can work wonders. I know looking cute and feeling cute can be two separate things, and can take time - so I wish you well on both fronts!!
Jessica Morgan said…
This comment has been removed by the author.
Jessica Morgan said…
This comment has been removed by a blog administrator.
Jessica Morgan said…
This comment has been removed by a blog administrator.
Unknown said…
I guess I'm in stage 2. The other day I just said 'fuck it' went to the salon to get my head shaved. The lady there noticed some baby hairs and refused to shave my head. Instead she gave me a bottle of hair growth stuff. I've been using it for a week and notice lots of baby hairs sprouting up. Also my scalp is now skin color instead of red and tender. It's called kaminomoto hair growth, give it a try it just might work. My hair is still falling out in clumps but now have hope that they'll grow back. I'm also going to try supplementing with vitamin E. Hope this helps someone who doesn't have too much scarring yet.
Sara Gorman said…
A big congratulations on the baby hairs!!! That is such a good sign, and you're on your way to a thicker head of hair. Hooray! So glad the hair growth worked for you. Best wishes as those clumps stop dropping, and the hairs keep growing. Only good things to come!
Unknown said…
This blog has something different like features, facts, stats and much more at only in one platform. laser hair removal agoura hills
Unknown said…
This comment has been removed by a blog administrator.
Unknown said…
This comment has been removed by a blog administrator.
neme amber said…
This comment has been removed by a blog administrator.
Unknown said…
I read your post. it has a great information for all those persons who are facing hair loss problem. Your blog will help them. Thanks for sharing.
Jannat EVE
Unknown said…
This comment has been removed by a blog administrator.
V Care Pharmacy said…
Hairs are very important for all peoples. Because hairs are very important for peoples look also.
Foracort Rotacaps 400
Liv Slim
celina said…
This comment has been removed by a blog administrator.
Unknown said…
Great Post
I hope that it may interesting product for hair fall and regrowth hair@ hair building fiber
Olivia Hamilton said…
Your post is really great. I enjoyed it and hope people will enjoy also.
Coverit 2% | Famocid 20
Anonymous said…
This comment has been removed by a blog administrator.
Anonymous said…
This comment has been removed by a blog administrator.
Anonymous said…
This comment has been removed by a blog administrator.
Unknown said…
Very nice and helpful information has been given in this article. I like the way you explain the things. Keep posting. Thanks..

hair transplant in indore
Unknown said…
Hair Loss Treatment That Works-Get one of the most Effective Hair Growth Products on the market. Free Shipping Worldwide. Hair loss treatment for thinning hair, baldness and slow hair growth.
Olivia Hamilton said…
Mintop Lotion is very helpful for men's hair loss and baldness problem.
Anonymous said…
Best bog to read out to cure hair fall problems should also visit https://awesomebazar.com/hair-care/hair-fall-treatment.html
Unknown said…
i thing this problem is mostly start in 3 stage of life because i have seen many people when they entered in 3 stage of life hairs start losing.what is main reason of behind it of hair losing.

FUE hair transplant in Birmingham | Cheap hair transplant in Newcastle
Unknown said…
Thanks for posting this blog , it was very helpful and interesting

Hair transplant in indore
Unknown said…
yes there are several steps of hair losing as you have mentioned.
nice blog very attractive information that you have mentioned.keep doing this i personally adore it.
Cheap hair transplant clinic in London | Hair transplant clinic in Birmingham
Anonymous said…
This comment has been removed by a blog administrator.
Unknown said…
First of all, one's hair needs to be in good condition before applying any iron, for curling or otherwise. Purchase the best (and ideal) shampoo and conditioner that you can afford. There are specialized shampoos intended for a particular type. Just make certain that you read the labels well.

Women's Top Hair Care Products
Unknown said…
I too have hair lost due to DLE. I couldn't wear the weaves and wigs it irritated my scalp and face. My Dr. Wrote a letter trying to get the insurance to pay for pure hair. Refused . I just knew there was a way then I found the temple in India women offer there hair to their God as a sacrifice. Now I get it sewn on weft from a single donor
I get it seem in also wigs made. No more flares scalp calm and face no shots either. Read my story Beautifulhairx.com
allenjones said…
Really i am impressed from this post....the person who create this post he is a great human..
thanks for shared this with us found this informative and interesting blog so i think so its very
useful and knowledge able.


Protein Supplements For Hair Loss
Protein supplements for hair growth
Best Solution To Hair Problems
Unknown said…
Thanks for providing the some useful information about this topic. really love it. I'm really glad that I'm found your blog. just bookmark it and looking for the new posts. at my website you can found the clinic of best hair transplant in India who provide the best treatment at vert cheap prices. just visit once and now at this page you can find the clinics of Bangalore area. hair transplant in Bangalore
Unknown said…
really amazing TIPS to longer hair, Secret from Lupus hair loss. i am so much agree this kind of treatment for fast growing hairs.

FUE hair transplant in London |
NATURAL SOLUTION FOR YOUR HAIR LOSS
Unknown said…
This comment has been removed by a blog administrator.
Josephlo23 said…
You've definitely provided some great tips on getting longer and healthier hair. I also read an article that talked about the same thing.
Unknown said…
Thanks for sharing such kind of very useful information. As per my knowledge, FUE Hair Transplant in Hyderabad best procedure hair move donor area to bald area through surgical Procedure and looking so great after Hair Transplant.
allenjones said…
This one is great and is really a good post Home remedies for Hair fall. I think it will help me a lot and is very much useful.I would like to share some more tips related to Hair.



Protein Supplements For Hair Loss
Protein supplements for hair growth
Anitha said…
Great tips..sure i can use these.

i recently found one method with Natural Home Ingredients
curd, curry leaves, methi seeds and egg white just mix and apply it gave great results..
Anonymous said…
Excellent Post.. it will help for many people
Some more tips at Health & Beauty Tips
Unknown said…
Your posts are good and so informative.

hair replacement in uk
Rose Maria said…
How to reduce hair loss for men?
hair loss
Unknown said…
thanks for sharing this post, it is very help full for those people who suffering from hair loss problem... http://eugenix.in/odisha/hair-loss-treatment-in-bhubaneswar/
Sven Leuter said…
Vielen Dank für die hilfreiche Informationen.
Ich bin sehr glücklich und dankbar, dass Sie diese mit uns geteilt.
Vielen Dank für den Austausch und halten uns bitte informiert mit neuen inform wenn möglich. Ich habe einige verwandte Informationen, die Sie unten mögen
Hair Vox
Premium Cambogia Ultra
Unknown said…
I agree with this content, Discussed inside wondeful way upon Baldness therapy. It is really well composed short article. This blog retain the Information regarding the particular Hair loss problems as well as the solutions to retrieve the particular hairloss problems.
Hair loss could be the frequent factor in these days. 80% men and women are susceptible to this issue. Nevertheless the solution in this difficulty may also be obtainable one of many men and women. We must select a right method to eliminate this issue.
But Things You Need To Know Before Choosing Best Hair Transplant Centre in Delhi
Unknown said…
Your blogs and every separate material are so remarkable and lucrative it makes me come back most again. hairwiki.org
Unknown said…
This comment has been removed by a blog administrator.
Unknown said…
Hair loss is very frequent nowadays. The reasons are the pollution, stress, hormonal changes, thyroid, heredity etc.. but this problem is not permanent, it can be cure,Radiance Hair Transplant center in India offers a best solution for hair fall treatment.
Unknown said…
Nice article as for me. It would be great to read something more concerning this theme. That is very interesting I love reading and I am always searching for informative information like this. natural factors stress relax
Needto bike said…
here is great tips for At hair falling out
slution.
I read your post and got a good information.
Unknown said…
Keratin is the best treatment for hair.Hair becomes thick & shiny..This is the best treatment.keratin treatment sydney
Unknown said…
I feel so happy about myself that I considered of having a hair transplantation which restore my looks and confidence.
hair transplant Ludhiana
Unknown said…
Keratin treatments work great, however, you need to know how to use the products if you want to succeed. I know there probably are plenty of tutorials on the web but for your convenience I will show you this video https://www.youtube.com/watch?v=2oohJGqv4l4&feature=youtu.be. You can find all essential stuff in there and it will help you understand what to do and how to do it. Give it a view.
Unknown said…
Thanks for providing such a blog Here we can share our thoughts.
For more information on Best dermatologist check Best Skin, Hair Specialist Doctor in Pune
Herry Johnson said…
This comment has been removed by a blog administrator.
Anonymous said…
Thanks for These tips are very crucial to keep your hair health and sleek.Hair Transplant in Ahmedabad recommend hair treatment tips that help in hair grow and strong hair.
Unknown said…
This comment has been removed by a blog administrator.
Reena Mehta said…
This comment has been removed by the author.
Reena Mehta said…
This comment has been removed by a blog administrator.
Unknown said…
Nice posting about "Lupus hair loss: managing the fallout"...............

Gharelu Nuskhe for Hair Fall
Jr. Williams said…
This comment has been removed by a blog administrator.
Carol Anderson said…
This comment has been removed by a blog administrator.
Unknown said…
Hair Transplant in Delhi brings confidence back in your life and give you perfect look with affordable cost. Hair Transplant In Delhi
Anonymous said…
Useful article. Hair regrowth is a challenging target for people. Considering the falling quality of diet, pollution falling hair, baldness or thin hair have become a huge problem for all. While taking a healthy diet is desirable, applying other natural remedies like olive oil or castor oil also helps. As in my case it was useful to get rid of falling hair and trigger hair regrowth. I found this video tutorial useful.
Hair growth treatment
Stuart Spindlow said…
This comment has been removed by a blog administrator.
Anonymous said…
This comment has been removed by a blog administrator.
joel osas said…
This comment has been removed by a blog administrator.
Unknown said…
This comment has been removed by a blog administrator.
Unknown said…
This comment has been removed by a blog administrator.
historypak said…
Very useful info. Hope to see more posts soon!. click here
andy said…
This comment has been removed by a blog administrator.
Anonymous said…
This comment has been removed by the author.
joel osas said…
This comment has been removed by a blog administrator.
This comment has been removed by a blog administrator.
hair transplant said…
Thanks for amazing tips love it, please share more thanks :)
Linda Woodtree said…
I know it doesn't sound like it will work, but it did work well. Add oil to your shampoo. Get some Tea Tree Mint Shampoo from Dollar Tree for $1. Take out about 1/4 of the shampoo out of the bottle. Replace it with any of the following or a mix of them: pine tar (thick and sticky 2T at the most and I got it from a livestock/ranch type of store about $8 for a quart), olive oil, castor oil (1-2T - $2.50), grape seed oil, or whatever you can afford. I used these things because my daughter was losing her hair and it saved her hair. She is very pleased with it. We started with just the pine tar, but have added a few others if she flares. Even her dermatologist is happy with this.
Sara Gorman said…
Thx so much for sharing your recipe! So glad it worked for your daughter. And great that you shared your successes with her doctor. So important to keep the docs in the loop! Take care!
Rasneel kaur said…
This comment has been removed by a blog administrator.
Anonymous said…
I was recently diagnosed with lupus. Before my hospitalization, i was experiencing a lot of hair loss. I didn't think much of it. Now almost a year later, i dont have a lot of hair. & the hair i do have is thin & brittle. I am a young 20 year old female & my confidence is going down the drain. My hair was something I was proud of. It used to be thick & silky. I wish there was something that i can do to make my hair go back to how it was.
Sara Gorman said…
I remember feeling so deflated after one particular bout of hair loss. It just seemed as if I would never again look in the mirror and see the person i knew looking back. It was a really crummy feeling! But two things happened...not as fast as i would have liked, mind you...but they did. 1) My hair DID start to grow. It took awhile for the thickness to come, but ever so slowly, i could see and feel remnants of my old head of hair returning. I just had to wait. It always takes a million tines longer for it to grow back then it did to lose it! And 2) I learned that thinner hair has its upsides. It's easier to style, takes less time to dry, and is more fun to play with re: hair product. :) I also learned that without my big mane, i could highlight other aspects of my "look" (like mascara and earrings). I was still "me"- but now with a new look that I got to play up and explore. (Earrings were aleays hidden in my long locks, and my new hair growth brought natural highlights, which was fun!)

And because life with lupus is never boring :], it's worth noting that after another round of hair loss after that one, my hair came back thicker and silkier (and with curl!) than ever. So flexibility here is key. You'll become a master at adapting...and that's so valuable in life! Best wishes!

Popular Posts