Old benchmarks revisited
I've recently seen the resurgence of two past benchmarks - one good and one not so good. Which would you like to hear first - good news or bad news? Before you answer, I should actually say that the bad news isn't really all that bad - and it does have a bit of a good news twist - so maybe I'll just start with that one, and save the best for last.
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Bad news: I have another round of hair loss under my belt. My hair is thin enough now that I can twist it up and pin it back with a single, solitary clip...one that, pre-Bernadette delivery, wouldn't have been big enough to hold even half of the hair on my head. I've been here before - as hair loss is nothing foreign to me - but I was really hoping that it wouldn't be significant this time. Of course, it's not as bad as it could be - I've written before about being able to pin my terribly thinning hair back using little teeny baby clips - so while the clip in question is small, it's not that small. And I'm pretty sure it's just post-partum hair loss - not lupus-induced loss - which is a very good thing. It's not noticeable to anyone but me or Johnny, or maybe the kind cleaning people who scour my bathroom every few weeks...but it has made a bit of a dent in the old hairdo.
***
The good news twist: I'm pretty sure the loss is starting to subside. (At least the drain in my shower leads me to believe this is true.) Cross your fingers that I haven't just jinxed myself. I'll be sure to keep you posted!
***
And speaking of jinxing myself - onto my good news: I'm not due back to see my rheumatologist for three, count 'em, three months! That's never happened to me before - in the 10 years I've had lupus, I've never been able to go more than two months between appointments. Not because I was feeling bad...but just because my doctor wanted to keep tabs on me. But at my last appointment at the beginning of December - he said he wanted to see me back in 3 months. Woohoo!!! I waited to post about it for a good month, because if you recall, the only other time he's ever suggested we do three months between visits, here's what transpired the week of the appointment:
*
The day of the appointment - Dr. S declares a three month gap between that appointment and the next one.
*
The day after the appointment - I post a blog about said gap, gushing about how excited I am to have reached a new benchmark.
*
The day after I publish my gushing post - Dr. S calls to say that the test results of my urine sample came back - protein positive - and that I need to do a 24-hour urine test AND move my appointment up a month and a half. Ugh! Did I jinx myself or what?
*
The day after Dr. S calls - I write a follow-up blog, taking back my gush.
*
So this time - I vowed not to breathe a word, or get myself too excited over the prospect of the 3-month gap. In fact, Dr. S gave me a 24-hour jug and a prescription at my December appointment, just in case the test results came back protein-positive. But a month later - I'm happy to say that I'm still on the 3-month trajectory and protein-free. Yippee!!
*
Of course - in an upcoming post, I'll tell you about the little 12-hour arthritis flare I had - something I'm calling the lupus flare fire drill - which almost had me thinking that 3 months wouldn't happen. But so far so good. Stay tuned for details!
***
Bad news: I have another round of hair loss under my belt. My hair is thin enough now that I can twist it up and pin it back with a single, solitary clip...one that, pre-Bernadette delivery, wouldn't have been big enough to hold even half of the hair on my head. I've been here before - as hair loss is nothing foreign to me - but I was really hoping that it wouldn't be significant this time. Of course, it's not as bad as it could be - I've written before about being able to pin my terribly thinning hair back using little teeny baby clips - so while the clip in question is small, it's not that small. And I'm pretty sure it's just post-partum hair loss - not lupus-induced loss - which is a very good thing. It's not noticeable to anyone but me or Johnny, or maybe the kind cleaning people who scour my bathroom every few weeks...but it has made a bit of a dent in the old hairdo.
***
The good news twist: I'm pretty sure the loss is starting to subside. (At least the drain in my shower leads me to believe this is true.) Cross your fingers that I haven't just jinxed myself. I'll be sure to keep you posted!
***
And speaking of jinxing myself - onto my good news: I'm not due back to see my rheumatologist for three, count 'em, three months! That's never happened to me before - in the 10 years I've had lupus, I've never been able to go more than two months between appointments. Not because I was feeling bad...but just because my doctor wanted to keep tabs on me. But at my last appointment at the beginning of December - he said he wanted to see me back in 3 months. Woohoo!!! I waited to post about it for a good month, because if you recall, the only other time he's ever suggested we do three months between visits, here's what transpired the week of the appointment:
*
The day of the appointment - Dr. S declares a three month gap between that appointment and the next one.
*
The day after the appointment - I post a blog about said gap, gushing about how excited I am to have reached a new benchmark.
*
The day after I publish my gushing post - Dr. S calls to say that the test results of my urine sample came back - protein positive - and that I need to do a 24-hour urine test AND move my appointment up a month and a half. Ugh! Did I jinx myself or what?
*
The day after Dr. S calls - I write a follow-up blog, taking back my gush.
*
So this time - I vowed not to breathe a word, or get myself too excited over the prospect of the 3-month gap. In fact, Dr. S gave me a 24-hour jug and a prescription at my December appointment, just in case the test results came back protein-positive. But a month later - I'm happy to say that I'm still on the 3-month trajectory and protein-free. Yippee!!
*
Of course - in an upcoming post, I'll tell you about the little 12-hour arthritis flare I had - something I'm calling the lupus flare fire drill - which almost had me thinking that 3 months wouldn't happen. But so far so good. Stay tuned for details!
Comments
I wish this kind of book existed when I was diagnosed with Lupus at the age of eleven (in 1991).
I was told I had a life expectancy of ten years. What a ways we have come.
I lost 100% of my hair (alopecia totalis). With no definate answer, I suspect it is lupus related.
I love wearing my wigs. I can change my style, getting ready is fast and easy!!
Byron Brewer @ Knight and Sanders