About the Book

Published in the summer of 2009, thousands of copies of Despite Lupus have been sold, expanding its readership to nearly a dozen countries. The book has received the coveted LFA Education Committee seal of approval and has received world-wide attention from lupus organizations like Lupus UK, Lupus Ottawa, and Lupus Melbourne. It is available in bookstores and libraries across the country, and has become a nationally-recognized resource for lupus patients, chronic illness sufferers, doctors, nurses, and caregivers across the country and around the world.

Here’s a snapshot of Despite Lupus:
Feel like you’re losing the battle with lupus? Look no further than Despite Lupus, the book that will help you obtain the emotional and physical wellness you deserve. There is no cure for lupus, but there is a way to live well, despite it. The choices involved in living well with a chronic illness aren’t easy, but no one is in a better position to make the right ones than you. In Despite Lupus, you’ll learn how your lifestyle choices have contributed to your illness, why you make the choices you do, and most importantly, how you can make better ones moving forward. A fulfilling life awaits you; this is the path that will get you there. In Despite Lupus, you’ll discover:
  • Tips on tackling the mental and physical limitations brought on by the disease
  • Insight into dealing with doctors, co-workers, friends and family members
  • Tricks for managing test results, prescriptions, and myriad symptoms
  • Exercises to help you eliminate stress, re-evaluate priorities, and refocus productivity
  • Guidelines for setting boundaries at home, at work, or when traveling
In Despite Lupus, you’ll find a comprehensive and enlightening take on successfully managing a life with a chronic illness like you’ve never found before. In picking up this book, you’ve taken your first steps toward living well, despite lupus!

Who has Despite Lupus in their library?
  • Lupus Foundation of America chapters across the country, in particular: Seattle, Central Illinois, Washington D.C, Maryland, Virginia, and Minnesota.
  • Lupus Ottawa
  • Lupus UK
  • Lupus Melbourne
  • Alliance for Lupus Research
  • The S.L.E. Foundation
  • Café Moms
Despite Lupus also appears under the Book recommendations in the Lupus community at WebMD.


Anonymous said...

Dear Sara,
Your book has instantly changed my outlook on my life with Lupus. I was diagnosed 6 years ago at the age of 25, just 2 weeks before my wedding. Obviously there are many parallels in our lives. About 6 months ago, I began experiencing all kinds of symptoms that I had never had before and have been in a terrible depression since. It has been difficult to care for my 2 year old daughter and the drs appointments have been endless.
I just finished reading your book and had many "Ah ha" moments...I have been in denial and fighting the disease, not accepting it and making healthy changes to my lifestyle that might improve my condition. All throughout the book I saw myself...and several times I cried because until reading your book I felt so alone...as if no one could possibly understand the emotional toll this disease has been taking....I cannot thank you enough for writing this book. I know I will reread it several times to reaffirm all the positive suggestions you made and to help me remember that "a life with lupus is worth living". L.D.

Sara Gorman said...

Thank you for your kind words!!!

Anonymous said...

Dear Sara
I bought your book a years go and wrote you then to tell you how it resonated with me. Like you I was diagnosed at 26 but 2 weeks prior to my wedding! I've been doing ok and I was able to have my daughter who is almost 3. My husband and I are starting to talk about having another child and how the stress of another pregnancy and certainly another life to care for could change things related to my lupus. Today I reread your book and it gave me hope and also a feeling that I am not alone... That I'm not the only person that has had to think these thoughts and feel these feelings. I am so grateful to you for writing this book and sharing your life with your readers. Any advice regarding adding another child to the mix?!
Best regards
Laura D'Onofrio

Sara Gorman said...

So glad you know you're not alone, and thanks so much for writing! the best strategy i found when approaching both of my pregnancies was to feel as good as possible before getting pregnant (i.e. very limited if any disease activity). i find the healthy you are and the better u feel before u get pregnant, the better chances you'll have of feeling good during and after the pregnancy. the goal is a successful and healthy pregnancy, so i found i had to set myself up to succeed. for me, that meant waiting until my disease was manageable...which was hard,but worth it.

additionally, if u can, prepare to get help. with a second one, the ability " to sleep when your baby sleeps" kind of goes out the window, because there's aother little one in tow...so i found it immensely helpful to have help so that i COULD get that rest that i so desperately needed. hope that helps...so much more to say, but we'll start there. :)

Toy Deann said...

My name is Toya Terry. I was born in Cincinnati, Ohio and raised there for a short period of time. I was diagnosed with Systemic Lupus Erythematosus in 1995, and then I moved to California. When I first moved to California my diagnosis was changed to MCTD (mixed connective tissue disease). Since my first diagnosis, I have discovered that I have the factor V Leiden mutation, pulmonary embolism, ITP (idiopathic thrombocytopenia purpura), anemia, arthritis, membranous lupus nephritis and possibly fibromyalgia. Aside of that I am the mother of a very handsome and vibrant little boy. My life has been extremely challenging since my time as a young girl. But I’ve managed to make the best of it. I choose to express my hurt, pain and experiences with lupus through poetry. I wrote a poetry book called, "A Piece of Me". For more information check out my website: www.toydeann.com
We definitely don't get the recognition that we deserve. I'm happy that you've shared your story!

Sara Gorman said...

I can't wait to check out your site! So happy you, too, have found an outlet. You will no doubt positively impact so many people! Thanks for sharing.