Despite Lupus

Skip to main content

Search This Blog

Living Well with a Chronic Illness

Pages

Home
Praise for the Book
Praise for the Blog
Stylish Pillbags
About the Book
Helpful Hints
Lupus Lessons

More…

Posts

Showing posts with the label social media

Show all

February 10, 2021

Social Media and Lupus - Using my Energy Wisely

Get link
Facebook
X
Pinterest
Email
Other Apps

Pages

Home
Clutch by Sara Gorman
Praise for the Blog
Lupus Lessons
Common Medications
Speaking Engagements
Helpful Hints

Sara Gorman: Sara Gorman was diagnosed with systemic lupus at the age of 26. Determined not to let lupus rewrite her plans for the future, she fought to maintain her demanding work schedule, busy social life, and invincible attitude. But after four years of running her body into the ground, she realized she was fighting life, not living it. Committed to working with the disease rather than against it, she made it her top priority to start living well, despite lupus. Her book, "Despite Lupus: How to Live Well with a Chronic Illness", details the steps it took to reach that goal. In 2012, Sara also launched Sara Gorman’s Pillbags – a line of fun, fashionable pill organizers. The stylish, fabric pillbags can be found at retail stores across the country, on Amazon.com, and on her website at www.pillfold.com. A native of Indiana and graduate of the University of Notre Dame, Sara resides in Northern Virginia with her husband and two young daughters.

Visit profile

Labels

#butitsnotmylife1
#IKNOWLUPUS1
ableids2
ACA1
accepting help19
accommodation5
acid reflux1
acne1
adherence1
advocacy5

allergies6
Alliance for Lupus Research4
anemia6
anger2
angioedema8
antibiotics2
antidote5
antihistamine1
antiphospholipid2
anxiety3
aorta1
app1
appointments5
aps1
arthritis10
ascites1
Aspirin1
au pair3
aurinia7
autoimmune4
avise3
awards7
b121
baby136
Baby.steps1
babysitter16
baking1
bcomplex1
being kind to yourself1
Benlysta8
biologics2
biopsy5
biscotti1
blood work22
book168
boundaries3
brain fog2
bruising2
bubonic plague1
caffeine2
cancer30
cannabis1
caregiver10
caregiving22
caretaker15
cellcept41
changes1
charity14
Charity of the month12
chemotherapy4
chest2
chronic babe2
chronic control9
Clinical trial2
coffee3
colds2
Cologuard1
colonoscopy2
compassion2
confusion1
consistency1
Contest3
Context Media Health1
control the role2
copper1
coronavirus1
costco2
costs2
Covid1
Creda1
cure2
cytoxan1
dad6
dairy free2
death1
deed of the day10
dermatologist1
diabetes1
diagnosis10
Diet4
doctor183
dog4
donation3
doubt1
Dr. Lisa1
drug pricing1
dxterity1
Ebay2
eczema1
education3
elimination diet2
essential oils2
event75
Everyday Health2
exagen15
exercise29
exfoliation1
eyes5
Fabulupus5
Fairy and Wolf2
family15
fatigue74
fda2
fever4
fibromyalgia1
flare20
flu shot1
fluorescent lighting1
food15
food allergies4
food sensitivity4
free bag2
free books8
functional medicine5
fundraiser1
genetics1
gf df1
GI issues1
gi upset1
gift guide1
giveaway7
glioblastoma7
gluten free3
goodrx3
grief1
groceries online1
GSK8
guest post3
guidepost1
hairloss42
happiness1
healthevoices1
healthline14
healthwell1
heart5
hobbies1
holidays4
hope3
hormones2
hospital2
Hospital for Special Surgery3
house3
housework1
Human Genome Sciences3
husband55
Indiana9
infection2
inflammation9
infographic2
infusion1
injections1
insurance26
iron2
johns hopkins2
joint pain68
joint swelling30
journal3
just in case1
karate health1
Kazy Tauginas1
kidney12
kids158
knowyourmeds4
labs10
legislation12
LFA68
life1
lifestyle340
lists2
living well63
lovenox1
LRI3
lung tap1
lungs8
Lupus Alliance Research1
Lupus App1
Lupus Endeavor3
lupus nephritis7
lupus UK1
lupus.net1
LupusChick1
lupusin603
lupusla1
lupuzor1
lymph nodes4
malware5
mammogram2
media98
Medicare1
medication201
meditation3
medscape news1
menopause2
mental health7
methotrexate2
Michael B. Jordan1
migraine1
mindset2
mirror1
mom4
movie1
my lupus secret1
nails2
nap141
narcolepsy1
new england1
new york4
nick cannon1
nutbutter2
nutrition40
otc1
outcome health2
ovarian cancer8
overdo1
PAC1
pain29
Palliative care3
pancreas3
pancreatitis1
pandemic1
paracentesis1
parenting3
parents4
patent2
patients like me1
peppermint1
personality118
pharmacy10
photosensitivity28
picnic health2
pillbags182
planking1
plaquenil23
pleural effusion3
pneumonia1
poison ivy2
prayer1
prednisone29
pregnancy72
priorities3
pro tip2
promotions1
protection2
protein1
pugs39
radiation3
radio3
rash9
raynauds12
recall1
Recipe4
redness2
renovation28
research133
resources3
rest15
rituxan1
rosacea2
S.L.E. Foundation13
sale1
saying no5
Selena Gomez4
seminar1
shade2
shannon boxx3
shoulds2
side effects1
sister1
skin13
sleep123
social media1
spa2
Spreadsheet1
stigma1
stress. nap13
stretch1
stroke2
study7
StuffThatWorks2
sugar3
sun15
supplements2
support group7
survey2
swelling4
symptoms20
taper3
target accommodation1
technology1
telehealth1
tennis1
test results6
thoracentesis1
TLI1
topical1
tracking2
transfusion2
transportation1
travel29
treatment1
tree nut allergy1
ultrasound2
urinalysis3
Us In Lupus1
vacation11
vaccine1
vertigo1
video3
vitamin D3
walk2
water yoga1
webmd1
website4
wego health6
weight loss5
work121
writing1
xray3
yoga6
zoom1
zyrtec1

Show more Show less