Lupus and Genetics: Reading for hope!

This latest article from the LFA on genetics and lupus is a really good one. I had to read with courage, though. With two young daughters who have a very real possibility of getting lupus since I have it, I had to focus on the positives of the article, of which there are many.

1) Every year counts: I know firsthand how different the outlook is for lupus patients from the time I was diagnosed until now. In the past 14 years, we have more options to treat the disease, the increase in research has allowed for a better understanding of what the disease even is, and the increase in awareness has allowed lupus patients to talk more openly about the disease, connect with others who can relate,  and has ideally increased the level of sensitivity of friends, family, and coworkers. The prognosis HAS gotten better, and will only continue to improve. Thus, when future generations are diagnosed, the outlook HAS to be better.

2) It's never a guarantee: Just because I have lupus, doesn't mean the girls will definitely get it. There's a chance, but it's not for sure.  Bottom line.

3) The main point of the article - that researchers are zeroing in on genetic markers that indicate who gets lupus - is a huge step in the right direction. To quote the article, "If genetics research advancements continue on the same trajectory, medical experts might one day be able to look at a person’s genetic profile, predict the risk for developing lupus, and maybe even stop the disease before it begins." Can you imagine?!?!

Enjoy the article below -- and remember to focus on the positives!

http://www.lupus.org/magazine/entry/next-generation?utm_source=Newsletter+4-7-15&utm_campaign=Newsletter&utm_medium=email

Comments

Kim said…
There was a recent article in the Lupus Now magazine regarding a new treatment for Lupus with stem cells from umbilical cords or bone marrow. Successful results have already taken place in China and we may only be two years or so away from treatments in the US. I agree there is much hope for the future of our children!
April 8, 2015 at 12:02 AM
Unknown said…
I have lupus and my daughter was finally diagnosed at 18 after symptoms that started at 13. I recognized them early and as much as I didn't want it to be lupus I knew in my heart it was. I was glad to see this article and research because we were told so often "it is very unlikely she would have lupus also" it seemed they dismissed it despite all the symptoms. I hope that more research will help the medical community to be more proactive in children if parent has lupus to start treatment sooner and prevent complications!
April 27, 2015 at 11:06 PM
Sara Gorman said…
that's all we can hope for, right? Earlier diagnosis, prevention, and better treatment. I figure if my girls and I are aware of the symptoms, we'll be on the look out. I know it must be challenging right now for you and your daughter both, but I'm sure you'll be a constant support to her. She's in good hands. :)
May 3, 2015 at 12:27 PM
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