I can see clearly now...thanks to Henry

As you know, we lost our little pug Henry a week before Christmas. While we still think of that guy on a daily basis, I've come to realize yet another thing he taught me about life with lupus. I know, I know - I've blogged about Henry's little lessons before - but this time, I'm reminded of one if not the primary reason why I took the steps to write my book, and why I continue to keep this blog. My motivation? Because I want others to know what I didn't know when I was struggling with my disease.

I can think of dozens of things that I wish I knew when I was first diagnosed, dozens of things I wish I understood when it came to balancing work and my disease, dozens of things I wish I had uncovered about myself and the way I approached the disease. These and dozens of other epiphanies are exactly what I've attempted to notate in my book. It's the issues I address on this blog that I wish someone had told me years ago. And as I've said many times before, much of the information I impart did come from other people - the members of my support group, my family and friends, and my co-workers were all instrumental in helping me figure out the best way to live well, despite lupus. But I wanted it all in one neat, little package - with, I suppose, a front and back cover.

I've thought about this fact before - but since losing little Henry, I've been able to reflect on the things I wish I'd known about raising Mr. Hendo, too: that weight gain, lethargy, drinking more water, and slowing down can be signs of old age...but they can also indicate something else like diabetes; that his reluctance to take walks, jump up on the ottoman, get off the bed in the dark, or do steps could just be him being stubborn...or they could indicate something else like loss of vision. Of course, now that we know all that we do about diabetes, blindness, etc. Darwin's got it made. His brother Hen was just paving the way, taking one for the team, and bringing light to the world, one paw at a time.

If I can help even one person with lupus find their way more clearly, I can join Henry is knowing that my mission has been accomplished.


abbas said…
hi sara
i am Abbas from Iran
my wife has lupus and we knew this matter last week .
she is very sad for this matter.
i searched net and saw ur weblog .
please help me????
i hope ur writing help my wife.
Sara Gorman said…
Abbas - Thanks for stopping by. The weeks after a lupus diagnosis can be pretty tough...it's hard to know where to begin. I hope your wife's been able to find a good rheumatologist in your area. A doctor can help get her on the right track with medication, treatment, etc. And it's great that you're doing some web exploration for her...I'm sure she doesn't feel like doing much, so any support you can give her is great. She may have to take it slow for awhile (like, REALLY slow), but it's the best thing to do. Lupus isn't a disease that you can ignore...you kind of have to face it head on - acknowledging that you have a chronic illness that isn't going away, realizing that life may need to slow down for awhile, and accepting that while life as you know it may change, it is very possible to live well (and I mean emotionally and physically), despite lupus. Feel free to pose any specific questions - and if your wife is up to it, she can browse my past blog posts to find out more about my personal journey. My book might be of help to both of you at some point - but the blog is a great place to start! Take care and I look forward to hearing from you again.

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