ALL IN™ for Lupus Nephritis - Watch an Interview with Sara! 🎬

It was my pleasure to work with Aurinia Pharmaceuticals recently to add my journey with lupus nephritis (LN) to their Personal Stories Library. Their ALL IN™ website hosts a wealth of information and resources, and is definitely worth a visit!

Here are a couple of screenshots from their website (!), and just click here to watch my interview.

Aurinia has become a huge advocate for LN. They are dedicated to improving the lives of patients living with the disease through information and education. In an upcoming post, I'll tell you about their LN Awareness Resource Kit that is now available to ship to your home, available here. It's fantastic!


Stefano said…
Hi Sara,

As you know there is much talk about a drug called Plaquenil to stop COVID 19.
Many people use routinely Plaquenil to treat Lupus.
I am a scientist at University of Ferrara and think that we can learn a lot about the efficacy of this drug towards coronavirus simply by assessing the spread of the virus among these patients.
Can you please help and sponsor the survey on your blog?
I include below the text of the survey (only 3 questions, plus age and gender)
Hopefully we can quickly collect enough data to answer this important question.

This is a SurveyMonkeys link:
Help the world to fight Coronavirus!      
Do you use Plaquenil, Aralan or chloroquine ?
A common drug, called Plaquenil, has been shown by scientists to block the coronavirus in test tubes.
Many people worldwide use this drug, or its generic Hydroxychloroquine (HCQ),  to treat lupus erythematosus or rheumatoid arthritis.
Other people use a similar drug (Aralen), chloroquine, for malaria or Amebiasis.
I work at the  University of Ferrara (Italy). Like many other nations in the world we are now hit hard by coronavirus. The hospitals are more and more stressed by the ever increasing number of patients. The pandemic is now expanding worldwide. Large scale studies for the efficacy of this drug against Coronavirus are not yet available.
Even if you are not using any of these drugs, you can be part of the solution!
Simply answer 3 questions and help to stop this deadly disease, called COVID-19!

Many thanks!

PS Please help with sharing the link to the survey

Sara Gorman said…
We would love to help! I will repost the Survey as a post today. What an exciting prospect - for those already on plaquenil, who have been assumed to be at a higher risk - but also for any sort of breakthrough in fighting the coronavirus!

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