Quick Lupus Survey - conducted by a lupus patient to benefit lupus patients!


I was recently contacted by Kathy Castle, a doctoral student in the Department of Communication Studies at the University of Nebraska-Lincoln. She's conducting research that she hopes will improve the understanding of communication in family contexts for women with SLE. As someone with SLE, she's interested in conducting research that is aimed at better understanding the way that families communicate about SLE. What a great way to embrace your disease!

She's inviting people to complete an online survey about their experience with SLE. The survey takes 15-30 minutes, and here are the requirements to participate:

*Must have been diagnosed by a medical physician with SLE lupus at least one year ago

*Must be at least 18 years old to participate 
---**Nebraska, Alabama, and Mississippi residents - see special age requirements below.

*Must be a woman

I hope you'll take a few moments to help a fellow lupie sister. Wouldn't it be a great, easy way to take part in a little lupus research!?

To access the survey and participate in the research, simply click on this link: https://ssp.qualtrics.com/SE/?SID=SV_dgaALt3TLhSfTil

**To participate: Participants in the states of Nebraska and Alabama must be at least 19 years old or older to participate, participants in the state of Mississippi must be at least 21 years old to participate.


Comments

Ashley Ashbee said…
Sara, it's so great to read that you've been approached to help the lupus cause! I've been approached by researchers and I've found it so empowering to participate in their work. I imagine sharing the details of the survey feels empowering also?

I'm always going on about the importance of TRUE awareness. This is it! Kudos. Keep us posted on how things go.
Sara Gorman said…
I will definitely keep you posted. Thx for commenting, and glad you've felt the empowerment of contributing, as well. So good to feel involved!!! Take care!