I've recently participated in several lupus surveys, one of which led to a video interview for a study about photosensitivity and lupus, and another which prompted me to join a lupus research study to help better understand genetics and lupus. I had planned to simply pass along the genetics study information in a post, but I thought I needed to know what was involved before recommended it. In doing so, I got hooked! So now I'm doing the study, and would welcome some company!
The study is a joint effort between Pfizer, the Lupus Research Institute (LRI), and 23andMe, the leading personal genetics company.
Here's 23 andMe's official launch statement:
The company is [officially] launching The Lupus Research Study in collaboration with Pfizer and the Lupus Research Institute to enroll 5,000 individuals with lupus for a study to better understand the underlying genetic causes of lupus such as the onset, progression, severity and response to treatments for lupus.
We want to find a better way to treat lupus through genetics. By partnering with Pfizer (a pharmaceutical company developing drugs to treat lupus) on this study, we will work together to learn how your genes and your environment could play role in lupus drug treatment, and how they relate to lupus risk and progression. This will be the single largest genetics study of lupus anywhere in the world.
Our research objective is to understand the genetic associations found between lupus patients' DNA and their disease, and apply this understanding to Pfizer's drug development efforts.
Here's all of the information you need, and the initial requirements are as follows:
You'll then be asked to answer some additional questions to determine if you're eligible to participate. The study itself will require an hour or two of your time, and includes a saliva test (an idea to which I'm warming up!), and some surveys. Check out their website here, and you can also read an article about the study.