tag:blogger.com,1999:blog-8824828113983189391.post718161313224375126..comments2024-03-22T07:23:12.169-04:00Comments on Despite Lupus: GUEST POST: Benlysta Part 2: Three Years and ForeverSara Gormanhttp://www.blogger.com/profile/07608238591846611898noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8824828113983189391.post-82677275621691347472016-03-30T04:07:33.011-04:002016-03-30T04:07:33.011-04:00Your articles make whole sense of every topic.outr...Your articles make whole sense of every topic.<a href="http://qualityguestposts.com/blogger-outreach-service" rel="nofollow">outreach bloggers service</a>Stephan Scoothttps://www.blogger.com/profile/12396873226968978299noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-14891941949330750122016-01-19T20:38:40.740-05:002016-01-19T20:38:40.740-05:00Thank you for your kind words. These two pieces we...Thank you for your kind words. These two pieces were actually pretty hard for me to share. I will talk to anyone who needs my help about lupus and Benlysta but putting it out there was just so hard for me. Taking this step and sharing my story so broadly makes me know that I did the right thing if it can help people.<br /><br />Whether someone with lupus is a candidate for Benlysta or not, the one thing Benlysta can do for all of us is give us hope. Hope that it may work for you or if not then hope that it will lead to new drugs that could help. One new drug in fifty years is just not acceptable. <br /><br />-PattyGood Better Best Foodhttps://www.blogger.com/profile/12207531823059290610noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-80295872562544510502016-01-14T19:25:19.171-05:002016-01-14T19:25:19.171-05:00Thank you Sara for having such a great guest on yo...Thank you Sara for having such a great guest on your blog, and thank you Patty for this follow-up post! I can't tell you how amazing it is to read about another person's experience before/after starting a new treatment like Benlysta. I myself have not yet been prescribed it, but I can relate so much to your descriptions of the impact your disease has had on you - your physical symptoms, the loss of your personality, feeling like a shell of yourself, feeling like you're put together with duct tape and chewing gum. It is amazing to hear that, even though you're far from cured, there's such a difference between the way you felt before and they way you feel now that you're on this medication. Thank you for giving me hope that, with the right treatment, someday I might look back and realize that I'm doing so much better, and have my life back. Thank you again for sharing.<br />-KatherineAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-63910137274944755282016-01-14T10:26:05.008-05:002016-01-14T10:26:05.008-05:00I have been getting Benlysta almost exactly as lon...I have been getting Benlysta almost exactly as long as Patty and it's great. I have been at no more than 5mg daily of Prednisone for more than two years that has never happened to me before and I have had since I was 11 and I am 38. I have not had any side effects. I always drive myself to the infusion.Leannahttps://www.blogger.com/profile/10430025575870380007noreply@blogger.com