tag:blogger.com,1999:blog-8824828113983189391.post4737125273258599567..comments2024-03-22T07:23:12.169-04:00Comments on Despite Lupus: Yuck!Sara Gormanhttp://www.blogger.com/profile/07608238591846611898noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8824828113983189391.post-37182866145473477112009-02-09T17:35:00.000-05:002009-02-09T17:35:00.000-05:00Sorry to hear that your brother's girlfriend i...Sorry to hear that your brother's girlfriend is having such a hard time. The chronic pain that accompanies Lupus can be quite debilitating, so I'm sure she's trying her best to keep it under control. <BR/><BR/>While I've never been prescribed methadone, I did find that it can be used to control pain associated with Lupus (see this link - http://en.wikipedia.org/wiki/Lupus_disease - look under Analgesia.) <BR/><BR/>However, more common treatments/medicines can be found on the Lupus Foundation website (http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutdiagnosis.aspx?articleid=84&zoneid=15)<BR/><BR/>My doctor and I have tried quite a few drug combinations, most of which I listed on a previous post <BR/>(http://despitelupus.blogspot.com/2008/04/prescriptions-101-my-list.html)<BR/><BR/>Hopefully, she's working closely with her doctor to monitor her pain and manage her medication. The best advice I have for her is to stick closely to her doctor's orders (by taking the meds when and how he/she's prescribed them), and then being candid about whether or not the treatment is effective. There's usually some trial and error in figuring out the right combination of medication to control one's flare, so the more feedback she can provide her doctor, the better. She might also consider what lifestyle factors (stress, sun, etc.) are contributing to or causing her flares. Again, the Lupus Foundation website does a great job of touching upon these factors. <BR/><BR/>Best of luck to you all - and look forward to hearing from you again!Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-8909887641319842902009-02-08T02:29:00.000-05:002009-02-08T02:29:00.000-05:00Hello! Great Blog from what I little I have read, ...Hello! Great Blog from what I little I have read, but I was wanting an opinion from you since you deal with this awful disease.<BR/><BR/>My brother's girlfriend has lupus and treats the pain with methadone. She cannot stay off the drug for long and is pretty much addicted to it. I guess her symptoms are pretty intense without the drug. <BR/><BR/>Have you heard of methadone as a alternative drug option for lupus? How do you manage your pain? <BR/><BR/>Thanks for your insight. a concerned sister and now aunt.Suth-ern Mamahttps://www.blogger.com/profile/01916766395123133869noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-65099556492878251672009-02-06T13:30:00.000-05:002009-02-06T13:30:00.000-05:00It's SUCH a drag to have to monitor your activity ...It's SUCH a drag to have to monitor your activity level, I know! And I'm sorry you're feeling crummy. My only consolation is that the longer you have Lupus, the better you will become at gauging what your body can handle.<BR/><BR/>While it's hard not being able to work at a normal speed, I found that if I allow enough rest time (meaning days) in between phases of a project, I can usually hold off a flare. It was really annoying at first to allow so much extra time, but avoiding a flare is worth the trouble, right? Hope you're feeing better soon.Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-60908312962407740892009-02-03T14:05:00.000-05:002009-02-03T14:05:00.000-05:00Nice comparisons! I too have been down recently d...Nice comparisons! I too have been down recently due to the fact that I painted my office I'm guessing. Can I do none of my normal activities that involve anything strenuous again!?!?!? I feel like I live in a little glass bubble and don't want to rock the boat for heaven sake! Anything extra that I add to my already feeble schedule seems to throw things totally out of wack and BAM...welcome flare!Marilynhttps://www.blogger.com/profile/07787721582399677467noreply@blogger.com