tag:blogger.com,1999:blog-8824828113983189391.post4504313339192775537..comments2024-03-22T07:23:12.169-04:00Comments on Despite Lupus: May: A Month of Activities! Sara Gormanhttp://www.blogger.com/profile/07608238591846611898noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-8824828113983189391.post-83846014848844149082013-05-21T22:36:04.222-04:002013-05-21T22:36:04.222-04:00What an honor to be featured on your fabulous blog...What an honor to be featured on your fabulous blog! i love that you've taken time to highlight so many other bloggers--i've learned so much about so many new people! thanks so much, and i truly appreciate the great book review. i'll be sure to heck back often!Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-9873501997811169352013-05-21T22:31:32.691-04:002013-05-21T22:31:32.691-04:00http://www.lupus.org/newsite/pages/national-lupus-...http://www.lupus.org/newsite/pages/national-lupus-advocacy-summit.html<br /><br />it's sure to be a great event --held this year on june 24/25th. Thanks for asking!Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-88520236741259209992013-05-21T22:28:53.614-04:002013-05-21T22:28:53.614-04:00Actually, the advocacy summit is something differe...Actually, the advocacy summit is something different, and a great opportunity to stand up for lupus! I'll post a link to the advocacy summit in the next comment. let us know if you get involved!Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-29252948785587509672013-05-09T03:45:36.574-04:002013-05-09T03:45:36.574-04:00Sara: I highly respect the work you are doing in ...Sara: I highly respect the work you are doing in lupus awareness. As part of this month's focus, my blog is spotlighting a different lupus blogger every day, and today that is you. I trust you will be pleased with my summary, book cover shot and your head shot that I used in my review of your blog. Thank you!<br />Lupus AdventurerLupus Adventurerhttp://lupusadventurebetweenthelines.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-75446256157433559072013-05-07T22:42:28.054-04:002013-05-07T22:42:28.054-04:00Can't believe that it is May again already! I ...Can't believe that it is May again already! I feel like a full year has flown by so fast. I was wondering if the chapter summit that you mentioned was the same as the National Lupus Advocacy Summit I have been reading about? It sounds like a great event!Stephen in Miamihttp://www.clinicaltrialsgps.com/florida/miami-fl/noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-51902256382735507242013-05-03T10:16:03.959-04:002013-05-03T10:16:03.959-04:00You can register for the GSK May 14th event by vis...You can register for the GSK May 14th event by visiting www.usinlupus.com or calling 1-855-578-5348. Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-71136130656388412962013-05-03T10:14:30.140-04:002013-05-03T10:14:30.140-04:00The first of the GSK events will be held on Tuesda...The first of the GSK events will be held on Tuesday, May 14 from 8-8:30 p.m. ET. Lupus expert Dr. Christopher Parker, patient Rena and immunology nurse educator Chris Richards will be holding a prerecorded educational webcast and teleconference to better understand how changes in the immune system can lead to systemic lupus erythematosus (SLE, lupus). This webcast will highlight the science behind lupus, the types of lupus, the triggers of SLE, and the importance of open and honest communication with healthcare professionals. There are approximately 166,000 to 322,000 Americans who have SLE, the most common form of lupus.Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-74681732526928988602013-05-03T10:10:42.961-04:002013-05-03T10:10:42.961-04:00Oh my goodness. what a roller coaster you've b...Oh my goodness. what a roller coaster you've been on. So sorry to hear about your disease activity and unsuccessful pregnancy. i do hope you'll be able to get the disease in line soon--that solu-medrol is something else, isn't it? i'm providing a link to the generic registration form for the gsk seminar, but i couldn't find add'l info either. https://events.usinlupus.com/usinlupus-webcasts-registration.html<br /><br /> I'll post the add'l info that i rec'd about the event in the next comment. i hope it helps, and best of luck to you!!Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-58584607726035171692013-05-03T09:52:50.716-04:002013-05-03T09:52:50.716-04:00May is lupus awareness month?!?!?!? No way! A fr...May is lupus awareness month?!?!?!? No way! A friend told me about your site…I was diagnosed with lupus in 1997 but never really focused on it much (well, outside of seeing my rheumatologist, blood work, the infamous 24-hour urine tests and taking my medications). But, six months ago, the disease went crazy wild as a result of a pregnancy, which I ended up having to terminate in the second trimester. That led to a kidney biopsy that led to the diagnosis of lupus nephritis. Ugh. Totally not-by-the-book. Six months later – even after a blast of 3000 mg of IV Solu-Medrol and higher-than-usual daily prednisone, plus my other immunosuppressants – I’m still not in remission. So lupus is a bit more central to my world these days.<br /><br />All of that said, I saw the May 14th e-seminar sponsored by GSK and was interested, but don’t see any information on their site…do you have more details?<br />Jen @ And Two More Makes FIVEhttp://twomoremakesfive.blogspot.comnoreply@blogger.com