tag:blogger.com,1999:blog-8824828113983189391.post2850364408361936924..comments2024-03-22T07:23:12.169-04:00Comments on Despite Lupus: Woohoo! Benlysta's approved!Sara Gormanhttp://www.blogger.com/profile/07608238591846611898noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8824828113983189391.post-31275852366324652932012-09-01T18:26:08.267-04:002012-09-01T18:26:08.267-04:00A cure that will cost $20,000 a year? So you'd...A cure that will cost $20,000 a year? So you'd have to have over a million dollars to get it for your lifetime. Our doctors sent pictures of my sister and her case to see what they can do, it's been a year and nothing. My sister has the best doctor in the city and people still walk up to her and say "omg, what happened to your face?" I'll save my optimism until they make something affordable.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-42226589720125249162012-09-01T18:23:55.287-04:002012-09-01T18:23:55.287-04:00This comment has been removed by the author.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-13719513777868298792012-09-01T18:19:48.465-04:002012-09-01T18:19:48.465-04:00This comment has been removed by the author.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-78742855886677628562011-04-26T13:23:58.367-04:002011-04-26T13:23:58.367-04:00Shai - We're turning a corner on these meds, I...Shai - We're turning a corner on these meds, I can just feel it!<br /><br />Anonymous - And your participation gives us all hope!! Thanks so much and fingers crossed that it continues to work its magic.Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-51172844250500339532011-03-28T17:57:54.190-04:002011-03-28T17:57:54.190-04:00I am proud to be a part of the study that has been...I am proud to be a part of the study that has been going on trial for many years for Benlysta. Benlysta has helped me to improve lupus symptoms. I originally signed up for the treatment trial 5 years ago not expecting much but as time went on i noticed what a difference this treatment had made in my life. I found myself being more active, less stressed and lupus flare ups decreased. It gave hope to me that perhaps in time a definite cure will be found for lupus.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-42642349737690996772011-03-11T20:07:53.174-05:002011-03-11T20:07:53.174-05:00:))
Interesting times to be living in, right?
Th...:))<br /><br />Interesting times to be living in, right?<br /><br />This is the reason I am fighting so hard for my Rituximab to keep going. It may be off-label, but it works in a similar fashion to Belimumab. Target specific function.<br /><br />Sigh... just around the corner... gotta keep believing..Shaistahttps://www.blogger.com/profile/00259344471712162333noreply@blogger.com