tag:blogger.com,1999:blog-8824828113983189391.post2511602455373085333..comments2024-03-22T07:23:12.169-04:00Comments on Despite Lupus: Lupus fatigue: From "Not Tired" to "Tired" in Sixty SecondsSara Gormanhttp://www.blogger.com/profile/07608238591846611898noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-8824828113983189391.post-12408517924678766032013-03-16T18:20:06.477-04:002013-03-16T18:20:06.477-04:00I'm glad you have help, but i do hope that you...I'm glad you have help, but i do hope that you're able to finagle more. and don't feel guilty--you're a better mom for napping, and your lovely daughter no doubt knows that. take care....Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-2645397010020061642013-03-16T18:17:33.055-04:002013-03-16T18:17:33.055-04:00just seeing your comment now, but i appreciate you...just seeing your comment now, but i appreciate your thoughts! I hope your fatigue has improved, or that you've been able to manage it in a way that works. I recall the daily multiple bouts of fatigue make it seem like the whole day was a loss, so i hope you've found a way around it--be it a nap, long lunch, etc. Take care!Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-71550902168941324092013-03-16T18:11:12.642-04:002013-03-16T18:11:12.642-04:00...and missing pain meds is a very, very close sec......and missing pain meds is a very, very close second. :)Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-47021688336122329562013-03-14T21:56:15.029-04:002013-03-14T21:56:15.029-04:00Sadaf- believe it or not, I'm just seeing your...Sadaf- believe it or not, I'm just seeing your comment now! That fatigue is quite the lupus enigma, isn't it? Trying to preempt it is the only thing that seems to work for me. so glad you understand!! hope you're well. Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-15796779129641082362013-03-12T20:40:11.175-04:002013-03-12T20:40:11.175-04:00Thank you for making me feel not alone. My fiance ...Thank you for making me feel not alone. My fiance is in denial and caught up in his own world. My teen daughter helps so much with My son who is a toddler. often so I can nap. this comes with guilt. but I'm generally so desperate for help because, I too, cannot fight the sudden fatigue crash. you are lucky you have a spouse that helps. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-82561134061476954702011-10-11T12:24:30.146-04:002011-10-11T12:24:30.146-04:00I too appreciate so much you writing this post. I ...I too appreciate so much you writing this post. I am here at work and started bawling when I read your description about the feeling of exhaustion--that wave of complete exhaustion that washes over you in a way that almost debilitates and suffocates. I have been suffering so badly the last few weeks and every day experience this fatigue, multiple times per day. It's so hard to explain to those around me but you explained it so well. Thank you for you blog and for you book. I am just trying to cope now with my illness!Three K's and Two P'shttps://www.blogger.com/profile/07727421376418911093noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-48914781839657001572011-10-02T07:18:14.223-04:002011-10-02T07:18:14.223-04:00There's nothing like missing a nap to suddenly...There's nothing like missing a nap to suddenly make life very very much worse. It's worse than missing pain meds!Iris Cardenhttp://sometimes-it-is-lupus.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-49759231854683575602011-09-28T09:07:35.376-04:002011-09-28T09:07:35.376-04:00Thank you for this post. I thought I was the only...Thank you for this post. I thought I was the only one who went from "not tired" to "tired" that quickly. It's hard to explain to other people, especially kids, that you have to go to bed NOW. At times like that I can sleep anywhere - on the couch, the floor... on a desk lol.Sadaf Shaikhhttps://www.blogger.com/profile/02374844486026161672noreply@blogger.com