tag:blogger.com,1999:blog-8824828113983189391.post1772271574255829644..comments2024-03-22T07:23:12.169-04:00Comments on Despite Lupus: Adding Raynaud's to the list: a real lupus phenomenonSara Gormanhttp://www.blogger.com/profile/07608238591846611898noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8824828113983189391.post-85018844581345867102012-02-09T17:07:06.931-05:002012-02-09T17:07:06.931-05:00Someone recently told me at a lupus event that if ...Someone recently told me at a lupus event that if you keep your core warm enough so that you're almost sweating...you can keep raynaud's at bay. I scoffed when i heard it, but in trying it the last few times I've been outside...it really does work! Thanks again for the comments.Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-54102175088633849242011-12-27T20:16:08.399-05:002011-12-27T20:16:08.399-05:00I agree with the keeping your core warm comment. I...I agree with the keeping your core warm comment. I also find making sure that I have proper gloves and socks on and that my hands don't get wet (when scraping off my car for example) that it helps reduce symptoms.d'Artagnanhttps://www.blogger.com/profile/03027328289217391930noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-48390636895896565362011-12-22T22:00:36.856-05:002011-12-22T22:00:36.856-05:00Wow! Such great feedback, and super advice. Thanks...Wow! Such great feedback, and super advice. Thanks, guys - I'll be sure to use these tips in the coming months! Merry Christmas!Sara Gormanhttps://www.blogger.com/profile/07608238591846611898noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-53294190372140364402011-12-22T15:47:43.092-05:002011-12-22T15:47:43.092-05:00Hey Sara,
Thanks for writing about Raynaud's! ...Hey Sara,<br />Thanks for writing about Raynaud's! Over the years, I have found a couple of tricks to help with it....<br />1)wear mittens instead of gloves. gloves separate fingers and it is harder to keep fingers warm in gloves than in mittens where the fingers can help keep on another warm! also, I will often throw a hand warmer into the mitten to help me regulate temperature. <br />...sometimes just holding on to a cold grocery cart will cause me to lose circulation (even in summer)<br />2)I wear a down vest (north face)on any chilly days (even inside our house). my family calls it my uniform. :) I have found that if I can keep the core of my body warm it helps to keep Raynaud's at bay. <br />interesting that yours popped up after having children -- mine did too. lower body fat + aging seems to lend itself towards Raynaud's.<br />Merry Christmas to you and your family!Unknownhttps://www.blogger.com/profile/09290819488239566804noreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-51703912805285192352011-12-21T18:37:10.760-05:002011-12-21T18:37:10.760-05:00Another one here too!
I'm on nefidipine for i...Another one here too! <br />I'm on nefidipine for it thanks to some pretty nasty chilblains that haven't properly disappeared almost 3 years later. It does work! I still turn the crazy colours but the pain is nowhere near as bad as it used to be. I did an experiment, with my doctor's agreement of course, and stopped taking it for 6 months in spring/summer. If I'd even look at something cold I'd turn blue during that time!<br />The only thing is that I had to try out different dosages to find one that worked for me. Hot flushes at 22 wasn't a great look.Aymienoreply@blogger.comtag:blogger.com,1999:blog-8824828113983189391.post-76882118278850992482011-12-21T09:59:44.141-05:002011-12-21T09:59:44.141-05:00I have it, too, and I just found out recently that...I have it, too, and I just found out recently that it can effect your ears, too. My ears turn bright red and feel hot and tingly when I go from cold to heat. So it's not just fingers and toes!Lesliehttps://www.blogger.com/profile/13910940045470516414noreply@blogger.com