Friday, July 22, 2016

Nick Cannon on #Lupus: His best interview yet! #nickcannonlupus #webmd

I love everything about WebMD's latest interview with Nick Cannon. He's so positive and upbeat - but doesn't shy away from the fact that he's had to make a ton of accommodations in order to live well, despite lupus. I think he (and Selena Gomez) are great role models for lupus warriors. Just like us, they've had to rework their lives to make room for lupus. They've made changes to their lifestyle, been forced to take major medications to get their disease activity under control, and their careers have been affected (temporarily) to allow them to focus on their health. But are they still striving to be the best they can? Are they continuing to persevere, despite their illness? You better believe it! 

In fact, I think the subtitle of the article says it all: : 

Nick Cannon: A Warrior in the Fight Against Lupus

He's changed his lifestyle, not his work ethic, to manage the autoimmune disorder.

Here at Despite Lupus, our mantra has always been that you can still be successful, fulfilled, and challenged, while simultaneously accommodating for the disease. Our lifestyle changes don't have to effect our spunk, our drive, or our personalities. Yes, it can be hard. Yes, it can take time. And yes, there is some serious effort required to come up with strategies for managing life with this disease (hence my 1100++ blog posts!). But it's a task I've come to embrace, and I hope you will, too!

Here's my favorite quote (particularly the last line) from the article, but be sure to read the whole thing here. Thanks, #WebMD for featuring such a great lupus spokesperson! 

"The biggest challenge [Cannon] continues to face: getting enough sleep. “My doctor demanded that I get at least 6 hours and try to stretch it to 8, but I was a guy who was getting 0 to 2 hours some nights,” says Cannon, who is also chief creative officer for RadioShack. “I take pride in how hard I work, but I’ve learned that my symptoms flare up when I overexert myself.”But his new life has been tough. “Making real changes -- it takes time and it isn’t the easiest thing to do. A lot of people make lifestyle changes for a certain period of time to get in shape. I’m doing it to stay alive.”

Tuesday, July 19, 2016

The Bargain Bin of Pillfolds - Now available on Ebay! #pillorganizer #iloveoutletshopping

Here at Sara Gorman's Pillbags, we pride ourselves on superior quality and construction. But every few shipments, a pillbag arrives from our manufacturer that's not quite up to snuff. We pull it from our inventory, and mark it as slightly flawed.  It could be a pillfold pouch that's sewn smaller than we'd prefer, or a magnetic closure that doesn't "snap". Whatever the case, the minor defect doesn't keep the pillbag from doing what it does best - organizing and toting your pills in style! 

Thus, we've decided to start selling those flawed pillbags on Ebay, for a significant discount. The flawed pillbags are sold New With Tags (Ebay lingo!), come in our signature packaging, are shipped directly from SGP, and all flaws are listed in the Ebay description. 

Looking for a bargain? Want a back-up pillbag? Need to take a third (or fourth) dose of medication during the day? Or maybe your medication regimen requires a minimal amount of pills - and the size of the pillfold pouch isn't an issue. For whatever reason, take a moment and check out our new Ebay listings by clicking here or here. 

And let me know what you think. I always appreciate your feedback!

Friday, July 15, 2016

Thank you, Lupus Now, for including the Gorman girls in your great cover story "How Moms Manage Lupus"!

I was thrilled to be interviewed for the cover story of the summer issue of  Lupus Now, the LFA's leading lupus magazine. What an honor to take part in such a great article, titled "How Moms Manage Lupus." The editor in chief and author of the story, Jenny Thorn Palter, did a wonderful job combining the stories of the few moms interviewed. Don't our families look spectacular?!?!

The girls are thrilled with their magazine debut. It even prompted them to explain lupus to a little girlfriend the day after a copy of the magazine arrived. Spreading awareness while basking in their fame works for me!

Want to find out more about the Lupus Now magazine? Click here!

Wednesday, July 13, 2016

In the Gulfport, Florida area? Mark your calendars for 7/21 - Free Yoga class and lupus seminar!!

As a former recipient of the Charity of the Month pillbag program, I'm happy to spread word of the Lupus Foundation of Florida's upcoming seminar on lupus pain and fatigue. Linda Ruescher, Program Director of the Lupus Foundation of Florida, will be speaking, and a representative from the Sonia Plotnick Health Fund will be on hand to discuss how they can help women in FL with their healthcare needs. Christa Fairbrother, Yoga for Arthritis Instructor, will lead a chair/accessible yoga class for people with rheumatic diseases. This event is free but preregistration is requested.

Details are below. Hope you can make it, Floridians! 

Gulfport Lupus Seminar July 2016

Location:   Gulfport Library
    5501 28th Avenue South
    Gulfport, FL  33707

NameLocationStart DateStart TimeEnd DateEnd Time
Check in   07/21/2016 01:00 PM 07/21/2016 01:15 PM
Managing Lupus Pain and Fatigue   07/21/2016 01:15 PM 07/21/2016 02:15 PM
Break   07/21/2016 02:15 PM 07/21/2016 02:30 PM
Help Paying for Medications   07/21/2016 02:30 PM 07/21/2016 02:45 PM
Yoga for Arthritis-Hands On   07/21/2016 02:45 PM 07/21/2016 03:45 PM

Click here to find out more or to pre-register! 

Thursday, July 7, 2016

23andMe lupus patient video and lupus research study. Consider participating today!

Last year, I blogged about the great lupus study launched by 23andMe. I chose to participate (easy, quick, no hassle), and they are still accepting participants. You can find out more info here, or you can jump right in and enroll here. It was a great way to get involved with and support lupus research - and I was able to learn a little about my ancestry while I was at it. Cool!

23andMe recently created a video highlighting a lupus patient and her story, and I thought it was a good one to share. I love her positive spin on things. It screams "despite lupus" all over the place!!