Tuesday, December 29, 2015

Healthline's Best Health Blog - thanks for the nomination!

I'm thrilled to be nominated for Healthline's Best Blog Award this year!

I'm honored to be considered alongside such a fabulous group of online health advocates. Should you feel compelled, you can click here to cast your vote.  Just type in Despite Lupus (or your favorite health blog!) in the search bar, and hit VOTE!

Would love to see any beloved Lupus blog win top honors this year!

Happy New Year!

Thursday, December 24, 2015

Puravida Lupus Bracelets - What a great concept, and a spectacular gift!



I absolutely, positively love surprises. So when our good friends recently surprised the girls and me with beautiful, purple Lupus bracelets from Puravida, I was touched to the core!

This was my first introduction to Puravida, and I am impressed. They have a ton of bracelets as part of their Charity Collection, each that honor a different disease or ailment, and where a portion of the proceeds goes to that disease-specific organization with whom they've partnered. Puravida has donated more than $666,721 to date. In addition, every bracelet purchased helps provide full-time jobs for local artisans in Costa Rica.  You can read their full story here. I love good finds. I hope you do, too!

Tuesday, December 22, 2015

Healthline Lupus Infographic - Best visual of lupus out there!

I shared this lupus infographic a couple of years ago, and I still think it's one of the best illustrations of how Lupus affects the body. Here you go again - share if you like!


Effects of Lupus

Monday, December 14, 2015

Famous Rheumatologist Quotes - Words that guide our doctors to be great doctors!

"Your house is on fire and there are flames coming out of the upstairs windows. The firemen are already at the curb with their hoses and want to turn on the water, but you say ' " No, no, you'll ruin my curtains!"
  • This is a little story [Dr. Jack Cush] made up for patients who are reluctant to take a medication that [he knows] they need because they are frightened about possible side effects. [He said,] "They look at me a second, but they get it."

Oh, there's so much truth in this quote! If only I'd understood it when I was debating whether to start Cellcept years ago, when my own "house" was on fire. I could have saved myself so much consternation! You can read about my internal medication debate here. Suffice to say, going on Cellcept brought me back into the land of the living, and continues to work for me today.

The quote above is just one of the spot-on quotes included in an article written by rheumatologist Dr. Jack Cush.  The piece, titled "Famous Rheumatologist Quotes - Part I", is a compilation of famous quotes that he and his colleagues have used over the years to guide their ability to treat patients, and treat them well.

Thanks to Dr. Donald Thomas for sharing the article on twitter. (I bet Dr. Thomas has a few fabulous quotes of his own!)

Be sure to check out the entire list of famous quotes, but I'll leave you with just one more. This was contributed by a doctor who once worked with Dr. Cush, the author of the article, and he explains the genesis of Cush's words below:

"Hippocrates may say, 'First, do no harm' but if you ain't doing nothing, you're doing no good"
  • Attributed to J. Cush, MD. I heard this during my fellowship when Cush was my attending. It was in the scenario of a very sick SLE patient who developed toxic epidermal necrolysis, acute renal failure, high fevers, in septic shock. Her lupus was active. Everyone was afraid to give her aggressive immunosuppression in her current state. She was deteriorating quickly. This quote stuck with me. We went for it: IV Cytoxan and IV steroids. She got better. Fear paralyzes us from doing what should be done. Sometimes, we need to hear that voice that nudges us.

Friday, December 11, 2015

Jolly old elf


PainPathways' Best Holiday Gifts - the Pillfold makes the list!


Thanks, Pain Pathways, for listing the Pillfold in your list of top Holiday gifts for 2015! So excited to be included. Click below to see their full list of great goodies and gifts, and go to www.Pillfold.com to snatch up the perfect stocking stuffer!

The Best Holiday Gifts for Chronic Pain Sufferers - PainPathways Magazine