Friday, April 24, 2015
Ready for purchase today - the Pillfold Arlanda. What better way to travel with your pills than with a little aviation inspiration! Order today. Limited quantities available! Click here to find out more.
Wednesday, April 15, 2015
I'm excited to head to New Jersey this weekend for the HealtheVoices15 conference!
Sponsored by Janssen, in conjunction with Everyday Health, the weekend is jam packed with great speakers and break out sessions that would make any health blogger jump for joy. The folks at Janssen are graciously taking care of expenses for the weekend, and they have been extremely mindful of those of us who needs breaks, naps, and extra rest. The weekend is busy, but not overwhelming. Full, but not hectic.
I can't wait to meet up with the other patient advocates attending, as well as some of my fellow health bloggers. I'll be sure to report back on any other blogs you should check out, and any juicy details from the weekend.
Thanks again, Janssen, for the invitation to join you!
Friday, April 10, 2015
Tuesday, April 7, 2015
This latest article from the LFA on genetics and lupus is a really good one. I had to read with courage, though. With two young daughters who have a very real possibility of getting lupus since I have it, I had to focus on the positives of the article, of which there are many.
1) Every year counts: I know firsthand how different the outlook is for lupus patients from the time I was diagnosed until now. In the past 14 years, we have more options to treat the disease, the increase in research has allowed for a better understanding of what the disease even is, and the increase in awareness has allowed lupus patients to talk more openly about the disease, connect with others who can relate, and has ideally increased the level of sensitivity of friends, family, and coworkers. The prognosis HAS gotten better, and will only continue to improve. Thus, when future generations are diagnosed, the outlook HAS to be better.
2) It's never a guarantee: Just because I have lupus, doesn't mean the girls will definitely get it. There's a chance, but it's not for sure. Bottom line.
3) The main point of the article - that researchers are zeroing in on genetic markers that indicate who gets lupus - is a huge step in the right direction. To quote the article, "If genetics research advancements continue on the same trajectory, medical experts might one day be able to look at a person’s genetic profile, predict the risk for developing lupus, and maybe even stop the disease before it begins." Can you imagine?!?!
Enjoy the article below -- and remember to focus on the positives!